Specialty SCD PHIT Score by state
Click a stateThe network today
Rally points for state leaders
State comparison
| State | Region | Est. living with SCD | SCDC newborns ’16–20 | CDC SCDC | SCD law | Gene-therapy model | Comprehensive centers | Grant recipients | Specialty score | Network |
|---|
Est. living = population × Black share × 0.3% (modeled, same method as the PHIT Score Card). Click any column to sort.
Specialty score, ranked
Specialty SCD PHIT Score Card
Score breakdown
Where this state stands
How the Specialty SCD PHIT Score works
| Component | Points | What earns them | Source |
|---|---|---|---|
| Surveillance | 25 | State runs CDC Sickle Cell Data Collection | ASH CDC SCDC fact sheet (Feb 2026) |
| Policy | 20 | SCD law passed (20) or active/introduced (10) | State SCD law tally (May 2026, verify) |
| Gene-therapy access | 15 | Medicaid in the CMS Cell & Gene Therapy Access Model | CMS (launched Jan 2025) |
| Specialty care | 20 | Comprehensive SCD centers per 1,000 people living with SCD | NASCC directory (curated) |
| Community capacity | 20 | Grant recipients and community organizations per 1,000 living with SCD | 360° SCD Hub recipient roster |
Built on the PHIT Score Card's Sickle Cell lens. Real policy and program facts, modeled population burden.
County lens · PHIT Score Card sickle cell items
| County | Population | Est. Black population | Est. living with SCD | Est. trait carriers | Est. SCD births / yr | Comprehensive centers | Priority |
|---|
Modeled, the same way as the PHIT Score Card SCD tiles: county population × the state's Black share, then CDC rates (0.3% living with SCD, 1 in 13 trait, 1 in 365 births). Swap in CDC SCDC county counts as states share them.
Advocacy priority: biggest burden, biggest gaps
| State | Est. living | Missing | Score |
|---|
The asks
No population surveillance
Not in CDC SCDC. The gap is the story.
No SCD law
No state SCD law passed or active.
Stretched specialty care
2,000+ est. people living with SCD for every comprehensive center.
The 360° SCD Hub App: free for everyone
Funded by HRSA. It stays free and public, and its code is shared in a public GitHub. Members and staff use it to track health, learn, connect and log engagement.
- Never sold, never licensed for a fee
- Every partner's members can use it at no cost
- Includes the founding hub's HRSA-funded Executive Dashboard
The Command Center: the operating system
Built and owned by The Force for Health® Network, separate from any grant. Partners subscribe to run their programs, report and track impact. It connects to the free app, with no HRSA obligations.
- Each organization gets its own closed workspace
- Report once and roll up to the national view
- Survives after any one grant ends
| Organization | Type | City / State | Region | Federal funding | SCDC state | Stage | Notes |
|---|
Sources: SCDAA Member Directory (Sept 2024) · Federal Register 2025-17215 (HRSA-21-036 Newborn Screening Follow-up recipients, Sept 2021–Aug 2026) · HRSA MCHB Sickle Cell Program Partners (Treatment Demonstration Program) · ASH CDC SCDC fact sheet (16 states) · oneSCDvoice, GuideStar and Idealist. Stage and notes save in this browser.
| Resource | Lane | Audience | Site | Open |
|---|
Free App · HRSA HRSA-funded and public; never sold. · FFH-licensed Force for Health content the app uses under license. · National data · PHIT FFH's data engine. Every partner in the network shares this library.
Service units by month · all partners
Where the work happens
Service units by Community Support Zone, last 12 months.
Partner reporting status
| Organization | Type | Status | Last log | Service units | People reached |
|---|
These four are real public estimates, as published on 360scdhub.org/sickle-cell-in-arizona/ (CDC Data & Statistics; CDC MMWR 73(12), 2024; ADHS Newborn Screening). Everything else on this page is sample data.
Monthly service units
September is Sickle Cell Awareness Month. June includes World Sickle Cell Day.
By activity type
By zone
Who was served
Age bands
By partner
| Partner | Outreach logs | Service units | People reached | Patients & families | Referrals | Education share |
|---|
Counts under 5 show as "<5" so no one can be identified.
By staff member
| Staff member | Role | Partner | Outreach logs | Service units | People reached | Referrals | Last log |
|---|
Click a name to filter the whole dashboard to that person. Staff names are sample.
Services by reporting category
| Category | Activities | Service units | People reached |
|---|
Latest outreach logs
Logs carry staff, roles, age bands and zones. Never patient names.
Invite a partner organization
Organizations & contacts
| Organization | Type | Region | Contact | Stage | Next step | Due |
|---|
Add a contact
Recent activity
Report library
| Report | Audience | Cadence | Status | Partners included |
|---|
Build a report
Preview
Choose a period and measures, then build.
Schedules
| Report | Runs | Sends to | Next run |
|---|---|---|---|
| State quarterly roll-up | Quarterly | State SCDC Director | Jan 5, 2027 |
| Partner activity summary | Monthly | State staff | Nov 2, 2026 |
| Advisory Council packet | Quarterly | Council members | Dec 1, 2026 |
| National network share | Quarterly | 360° SCD Hub Network (de-identified) | Jan 12, 2027 |
How data moves
Partner environments
Each organization keeps its own members, contacts, case notes and messages.
Five partner environmentsArizona state environment
Receives de-identified totals from partners. Keeps its own CRM, staff and reports.
You are hereNational network
Receives only the state totals the State SCDC Director chooses to share.
Opt-inAlways stays with the organization
- Names, contact details and birthdates
- Health-tracker entries and journals
- Case notes and messages
- Any count under 5
What Arizona shares with the national network
Only the State SCDC Director can change these.
What partners share with Arizona
| Partner | Services | Education | Referrals | Members |
|---|
Each partner sets these in its own environment.
Arizona Health Community Advisory Council for Sickle Cell Disease
Health-system leaders at one table, working toward one standard of care.
| Member | Seat | Focus |
|---|---|---|
| Arizona Department of Health Services | Lead partner · Newborn screening | Connects newborn identification to the systems that treat SCD |
| Banner – University Family Care | Founding · Medicaid health plan (AHCCCS) | Coverage, care coordination and access |
| Phoenix Children's | Founding · Pediatric SCD program | Family-centered care from infancy through the teen years |
| HonorHealth | Founding · Adult & emergency care | Adult and emergency-department reach |
Council page: 360scdhub.org/az-healthcare-community-council ↗
Founding Hub · Community Foundation (sample)
Your monthly service units
What you share with Arizona
Names, health entries, notes and any count under 5 never leave your environment.
Live tools on the 360° SCD Hub
Who can do what in this state instance
| Role | Scope | State CRM | Reporting | Data sharing | Partner records | Manage users |
|---|
No role outside an organization can open that organization's identifiable records.
People in this instance
| Person | Role | Organization | Status |
|---|---|---|---|
| State SCDC Director | State SCDC Director | Arizona SCDC program | Seat reserved |
| State SCDC Staff | State SCDC Staff | Arizona SCDC program | Open |
| Partner Director | Partner Director | Founding Hub (sample) | Active |
| Coach Lucy Howell | Super Admin | The Force for Health® Network | Active |
| Dr. Rob Gillio | Super Admin | The Force for Health® Network | Active |