🧬 Force for Health · The PHIT™ Scorecard · Sickle Cell · Population Health Intelligence

Sickle Cell Community Scorecard

The SCD burden, whether a community can get care, and who is fighting for it — from verified federal sources. Real data where it exists; an honest "not collected" flag where it does not. That gap is the advocacy story.

National view · 🏆 Compare all states · auto-generated from verified federal data

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Physical Health — The Burden

Me · Dr. Rob · verified where surveillance exists

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Access & Systems — Can They Get Care?

Physical + Social · Dr. Rob · the care gap

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Policy, Coverage & Equity

Social · Coach Lucy · the levers we can move

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SCD Billing Codes & Coverage

ICD-10 · HCPCS · CMS gene-therapy model · how payers see SCD

🧬 Trait — carrier (the NBS "second box")

D57.3Sickle-cell trait — carrier status. The distinct payer code that captures exactly what Moses' Arizona newborn-screening change records.

🩸 Disease — ICD-10-CM D57

D57.0Hb-SS with crisis (.01 acute chest · .02 splenic sequestration · .03 cerebral vascular · .04 dactylitis)

D57.1Sickle-cell disease without crisis

D57.2Sickle-cell / Hb-C disease (.20 without · .21 with crisis)

D57.4Sickle-cell thalassemia

D57.8Other sickle-cell disorders

💉 Curative therapy — HCPCS / CPT · CMS Cell & Gene Therapy Access Model (since Jan 2025)

J3392Casgevy (exagamglogene autotemcel)

J3394Lyfgenia (lovotibeglogene autotemcel)

38206–38240Stem-cell collection · processing · cryopreservation · transplantation (CPT)

Codes are REAL (ICD-10-CM / HCPCS / CPT — verify annual code updates at deploy). Coverage counts are MODELED from the selected geography's demographics × published Medicaid share of the SCD population.

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SCD Community Assets & Supporting Orgs

HRSA MCHB regional consortium · state & regional partners

REAL — verified federal source STATE-LEVEL — set statewide, applies to county MODELED — estimate, labeled NOT COLLECTED — no surveillance PER SCFA — pending confirmation