📋 Your Pulmonary Embolism (PE) Health Passport
Notes, questions, trackers, and your care team — saved in your browser.
What happened at your last visit?
Questions to bring to your next visit
What you’re tracking
Record what matters week to week — symptoms, meds, sleep, mood, vital signs.
My Care Team
Pulls from your kindness log — open the Encounter Card to add or rate.
🌐 FFH Network Trackers
Placeholder — Lucy’s integration. Tracker URLs wire in here.
Your modifiable risk factors, turned into a plan
Dr. Rob is prototyping a Modifiable Risk Factor Motivator widget on Stroke first. When it ships it embeds right here — turning each Pulmonary Embolism (PE)-relevant risk factor into a tracked, evidence-backed action.
If you ever need to explain your Pulmonary Embolism (PE) in 30 seconds, start here.
“I had a pulmonary embolism — a clot in my lungs. I’m on a blood thinner. I wanted you to know because PE can recur, and the signs are usually sudden shortness of breath or sharp chest pain. If you see those in me, please call 911 immediately. If I fall and hit my head while on a blood thinner, ER even if I feel fine.”
📚Your 16 Course Modules
Click any module to open it. Each opens on the Knowledge Check — that’s your pretest. Taking it unlocks Learn It; reading each tab unlocks the next; finish by retaking the same check to measure your growth.
What a PE Actually Is
A clot in the pulmonary artery. Can be small or massive. Anticoagulation prevents recurrence.
Why You're on a Blood Thinner
Prevents new clots. Duration depends on whether yours was provoked.
Spot a New PE
Sudden severe SOB · sharp chest pain with breath · cough up blood · syncope — 911.
Triggers
Long immobility, surgery, hormones, smoking, dehydration, clotting disorders.
Provoked vs Unprovoked
Same as DVT. Drives how long you stay on anticoagulation.
Anticoagulant Adherence
Daily, on time. Major bleed risk if doubled. Stop only with team OK.
Symptoms to Watch
Persistent shortness of breath weeks later may mean lingering clot. Tell your team.
Return to Activity
Slowly. Cardiopulmonary rehab if you had a large PE.
Make Every Visit Count
Bring your med list, breathing log, any swelling notes.
Your Care Team
PCP + pulmonologist + hematologist for complex cases.
Telehealth
Most follow-up can be telehealth.
Insurance & Cost
DOACs costly; assistance programs exist.
Surgery, Pregnancy
Both need careful anticoagulation planning.
Teach & Mentor
PE survivors carry knowledge worth sharing.
Advocate
Hospital VTE prophylaxis saves lives. Push for it.
Research & Trials
Newer agents, IVC filter retrieval studies, post-PE syndrome research.