📋 Your Cardiomyopathy Health Passport
Notes, questions, trackers, and your care team — saved in your browser.
What happened at your last visit?
Questions to bring to your next visit
What you’re tracking
Record what matters week to week — symptoms, meds, sleep, mood, vital signs.
My Care Team
Pulls from your kindness log — open the Encounter Card to add or rate.
🌐 FFH Network Trackers
Placeholder — Lucy’s integration. Tracker URLs wire in here.
Your modifiable risk factors, turned into a plan
Dr. Rob is prototyping a Modifiable Risk Factor Motivator widget on Stroke first. When it ships it embeds right here — turning each Cardiomyopathy-relevant risk factor into a tracked, evidence-backed action.
If you ever need to explain your Cardiomyopathy in 30 seconds, start here.
“I have cardiomyopathy — my heart muscle is weakened or abnormal. I take daily medications, sometimes have a device implanted (ICD or pacemaker), and watch for warning signs. I wanted you to know because sudden palpitations, fainting, or severe shortness of breath are real emergencies for me. If I have a device and it shocks me, that’s the device working — but call my care team afterwards.”
📚Your 16 Course Modules
Click any module to open it. Each opens on the Knowledge Check — that’s your pretest. Taking it unlocks Learn It; reading each tab unlocks the next; finish by retaking the same check to measure your growth.
What Cardiomyopathy Is
Heart muscle weakened or abnormal. Multiple types — dilated, hypertrophic, restrictive, others.
Guideline-Directed Medical Therapy
Foundational meds reduce mortality. Adherence matters daily.
Spot the Red Flags
Fainting · ICD shocks · chest pain · severe shortness of breath.
Triggers
Sleep loss, missed doses, alcohol, dehydration, new infections.
Know Your Numbers
EF, NYHA class, BNP trend, device status. They drive your care.
Medication Stack
Beta-blocker · ACE/ARB/ARNI · MRA · SGLT2. Each adds survival benefit.
Devices
ICD or pacemaker for some. Check schedule + battery life.
Cardiac Rehab
Safe, supervised exercise improves capacity and mood.
Make Every Visit Count
Bring weight log, symptom log, and any device alerts.
Your Care Team
Heart-failure cardiologist or EP cardiologist + PCP + sometimes psychology.
Telehealth & Remote Monitoring
Device data flows automatically. Telehealth for adjustments.
Insurance & Cost
Devices covered. Some newer meds expensive — assistance programs exist.
Activity & Driving
Activity tailored. Driving rules tighter post-ICD shock.
Teach & Mentor
Newly diagnosed patients benefit enormously from your reality check.
Advocate
Family screening for genetic cardiomyopathies. Spread the word.
Research & Trials
Gene therapy, advanced devices, novel meds (mavacamten for HCM).