📋 Your Aortic Valve Disease Health Passport
Notes, questions, trackers, and your care team — saved in your browser.
What happened at your last visit?
Questions to bring to your next visit
What you’re tracking
Record what matters week to week — symptoms, meds, sleep, mood, vital signs.
My Care Team
Pulls from your kindness log — open the Encounter Card to add or rate.
🌐 FFH Network Trackers
Placeholder — Lucy’s integration. Tracker URLs wire in here.
Your modifiable risk factors, turned into a plan
Dr. Rob is prototyping a Modifiable Risk Factor Motivator widget on Stroke first. When it ships it embeds right here — turning each Aortic Valve Disease-relevant risk factor into a tracked, evidence-backed action.
If you ever need to explain your Aortic Valve Disease in 30 seconds, start here.
“I have aortic valve disease — either stenosis (narrowed) or regurgitation (leaky). I watch my symptoms and get regular echocardiograms. I wanted you to know because symptoms — chest pain with effort, fainting, or marked shortness of breath — change my care quickly, often into needing valve replacement. Fainting with effort is always a 911 call for me.”
📚Your 16 Course Modules
Click any module to open it. Each opens on the Knowledge Check — that’s your pretest. Taking it unlocks Learn It; reading each tab unlocks the next; finish by retaking the same check to measure your growth.
What Aortic Valve Disease Is
Stenosis (narrowed) or regurgitation (leaky). Both can fail the heart over time.
Medication Limits
Meds manage symptoms but don't fix the valve. Replacement is sometimes needed.
Spot the Red Flags
Fainting with effort · chest pain at rest · severe shortness of breath.
Symptom Triggers
Exertion, dehydration, fast heart rates, fluid shifts.
Severity Numbers
Valve area, gradient, regurgitation grade. Trended on echo over time.
Daily Meds
Often BP meds + diuretic. Some patients on anticoagulation.
Echo Schedule
Regular imaging — yearly or more often near intervention threshold.
Activity Limits
Vigorous activity restricted if severe stenosis. Stay engaged within limits.
Make Every Visit Count
Bring your symptoms, exercise tolerance, and recent echo report.
Your Care Team
Cardiologist + structural heart team + PCP.
Telehealth
Med management works telehealth; imaging is in-person.
Insurance & Cost
Valve procedures covered. TAVR has changed the landscape; costs vary.
TAVR vs SAVR
Less-invasive transcatheter vs surgical. Discussed by Heart Team.
Teach & Mentor
Pre-op patients value hearing from someone who came through it.
Advocate
Push for early symptom recognition — many wait too long to mention them.
Research & Trials
TAVR durability, mitral and tricuspid transcatheter therapies.