SCFA
SCALE Gameplan 2026
Sickle Cell Foundation of Arizona · Prepared by FFH Network
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SCALE Gameplan 2026

Eight Plays. Two Years. One Coalition.

How SCFA wins the next Pfizer SCALE cycle — and attracts funders beyond Pfizer.
Prepared For
Sickle Cell Foundation of Arizona
Authors
Coach Lucy Howell · Dr. Rob Gillio
Date
May 2026
Status
Internal Strategy · Confidential
Download .docx
Executive Summary

Eight awardees. Eight Arizona plays.

In April 2025, Pfizer announced the eight awardees of its inaugural SCALE Grants program. Every one of those initiatives is the kind of work SCFA is built to do here at home. The opening question is blunt: if Pfizer ran the cycle again next year, would SCFA make the short list? Today the answer is no. In twelve months it should be yes.

Why this matters

The 2025 SCALE cohort is a near-perfect roadmap of the eight projects every state-level sickle cell organization should be running. Pfizer told us, in dollars, what it values: state SCD registries, geospatial access mapping, community health worker integration, lived-experience data, ED treatment standards, youth policy training, and national advocacy playbooks. The grants are signals. We treat them as a procurement spec.

The whitespace

Arizona has no SCD-specific state legislation. We are not a CDC SCDC Surveillance state. We are not in the federal gene-therapy access pilot. Texas just passed HB107. New York is pushing Medicaid Health Home reform. California is applying to the federal gene therapy initiative. Arizona has done none of these things. That is the wedge.

The play

Sections 3 through 11 of this gameplan walk through each of the eight 2025 SCALE awardees and pair them with a concrete Arizona play, including funders beyond Pfizer for each. Section 12 stacks the plays into a two-year roadmap. Section 13 is a funder map. The final slide lists five things to do in the next 30 days. The goal is not to apply to SCALE 2026 cold — it is to spend the next twelve months making SCFA the obvious choice for Pfizer, while simultaneously stacking matching funding from HRSA, AzDHS, Vertex, BMS, RWJF, and Flinn.

Play
1
Data · Surveillance

Build the AZ SCD Registry Voice

Mirroring As One Foundation · SCALE AS ONE Voice Pilot · Texas
Awardee Project
Community-guided launch support for the new Texas SCD Registry created under HB107, with scalable engagement and policy-feedback mechanisms. Thesis: a state registry only works if patients and families trust it, contribute to it, and see policy outcomes from it.
SCFA's AZ Play
Launch a community-driven blueprint for an Arizona SCD Registry, modeled on Texas HB107 but tailored to AZ data governance and AHCCCS reporting. Six-month listening and design phase across Phoenix and Tucson, culminating in a 2027 model bill draft.
Why SCFA Wins
The 360° SCD Hub already collects coin-based engagement data and surfaces it through the PHIT Scorecard. We have the digital container other states are still procuring. A registry preference survey can stand up within 30 days.
AZ Partners
AzDHS Office of Newborn Screening · AHCCCS · Banner Health · Phoenix Children's · U of A Center for Rural Health · As One Foundation (peer mentor) · Sen. Catherine Miranda's office
Data & Outputs
Registry-design preferences (n=200 target) · Provider readiness survey · Policy brief "What Arizona Can Learn from Texas HB107" · 2027 model bill draft
90d
QUICK-WIN MOVE. Stand up a "Should Arizona Have an SCD Registry?" landing page on the 360 Hub with a 10-question survey. Promote through the Banner contract + FFH mailing list. Capture 50 responses by end of Q3 2026.
Play
2
Data · Surveillance

Map the Arizona SCD Access Desert

Mirroring Loma Linda University · Geospatial Mapping · Southern California
Awardee Project
Overlays patient location data against NASCC Centers of Excellence to produce an advocacy report and policy brief. Thesis: you cannot fix a care-access problem you cannot see — the political case for new Centers of Excellence is unwinnable without a visual map.
SCFA's AZ Play
Produce the Arizona SCD Access Map, overlaying the estimated 900 Arizonans with SCD against the nearest comprehensive SCD care location. Arizona has zero NASCC-designated Centers of Excellence — the map will be a literal blank canvas, which is the point. Publish on the 360 Hub, submit to AHCCCS.
Why SCFA Wins
We already host the National Sickle Cell Overview with state-level burden mapping. Extending the engine to AZ zip-code level is incremental engineering — not a green-field build. Dr. Rob's medical credibility carries the policy brief.
AZ Partners
ASU Knowledge Exchange for Resilience · U of A Center for Rural Health · AHCCCS Data & Analytics · Banner geographic data · Mountain Park Health · El Rio Health (Tucson)
Data & Outputs
Interactive AZ SCD Access Map · Policy brief · Arizona Republic op-ed (Coach Lucy + Dr. Rob) · Methodology appendix shareable with other access-desert states
90d
QUICK-WIN MOVE. Pull publicly available AHCCCS county-level SCD beneficiary counts. Build a static map mockup using existing 360 Hub mapping code. Post it as a teaser "Arizona Needs a Center of Excellence" on the Hub by July 1, 2026. This becomes the carrier asset for every funder conversation for the next 90 days.
Play
3
Data · Surveillance

AZ SCD CARE Connection — The Medicaid Health Home Pilot

Mirroring NYC Health & Hospitals · SCD CARE Connection · New York
Awardee Project
Pilot of integrated CHW + Health Home case management for SCD. Targets Medicaid reimbursement reform and federal SCD Comprehensive Care Act implementation. Thesis: states with an operational Medicaid Health Home model for SCD will be implementation-ready on day one when the federal Act passes.
SCFA's AZ Play
Design the AZ SCD CARE Connection, an AHCCCS-aligned Health Home pilot for SCD. Phase 1: published white paper. Phase 2: CHW + tele-coordination pilot with Banner. Phase 3: financial model presented to AHCCCS leadership.
Why SCFA Wins
Banner Health already pays us for SCD nurse training. That contract is the inside lane to a Banner–AHCCCS pilot conversation. Coach Lucy's overlapping role brings the technology stack at zero procurement cost.
AZ Partners
AHCCCS · Banner Health · Mercy Care (Banner-affiliated AHCCCS plan) · Equality Health · Phoenix Children's · AzCHOW (AZ CHW Assn) · SCDAA national office
Data & Outputs
White paper: "A Medicaid Health Home Model for SCD in Arizona" · Financial impact spreadsheet · 12-patient pilot design doc · AHCCCS exec leadership leave-behind
90d
QUICK-WIN MOVE. Schedule a 30-minute introductory meeting with the AHCCCS Division of Health Care Management leadership. Bring a one-pager titled "AZ Is Not Implementation-Ready for the Federal SCD Comprehensive Care Act." Banner contract is the warm intro.
Play
4
Assessment · Lived Experience

The Arizona CARE Survey — Lived Experience Data

Mirroring Bridges Point Inc. · CARE Initiative
Awardee Project
Patient-led collection of qualitative data on social and structural barriers — transportation, stigma, housing, food insecurity. Thesis: clinical and claims data miss the lived experience of SCD. Qualitative data fills the surveillance gap and humanizes the legislative ask.
SCFA's AZ Play
Launch the Arizona CARE Survey — a six-month patient-led data collection across Phoenix and Tucson combining a structured survey on the 360 Hub with three in-person town-hall focus groups. Publish findings as the annual "State of SCD in Arizona" report.
Why SCFA Wins
The 360 Hub coin-based engagement tracker is purpose-built for incentivizing survey completion. Pay respondents in SCFA Hub Coins redeemable for grocery cards, transportation credits, telehealth co-pay coverage. No awardee has comparable engagement plumbing.
AZ Partners
Phoenix Children's social work team · Mountain Park Health · El Rio Health · Black Mothers Forum · SCD Phoenix Family Network · AZ Community Action Association · MANA House
Data & Outputs
Annual "State of SCD in Arizona" report · Executive summary leave-behind · 3 town-hall video recordings (for legislative testimony) · Anonymized dataset deposited with U of A
90d
QUICK-WIN MOVE. Draft a 12-question AZ CARE Survey. Deploy on the 360 Hub by the first week of August. Recruit first 25 respondents through Banner clinic referrals and the FFH email list.
Play
5
Assessment · ED Care

The One-Hour Standard — ED SCD Treatment in Arizona

Mirroring Sickle Cell Medical Advocacy Inc. · Healthcare Navigator–Patient Assistance
Awardee Project
Addresses ED failures to treat ESI level-2 SCD patients within the NHLBI one-hour guideline. Thesis: every SCD adult knows the story — arrive in pain crisis, get triaged ESI-2, wait 90 minutes to 3 hours, often treated as drug-seeking. NHLBI says one hour. Documenting the gap creates the political opening.
SCFA's AZ Play
Launch the Arizona One-Hour Initiative. Phase 1: retrospective analysis of door-to-analgesia times with Banner + Phoenix Children's. Phase 2: ED Experience Tracker via the 360 Hub. Phase 3: model AZ Hospital Compact pledging the one-hour standard.
Why SCFA Wins
The Banner nurse-training contract is our open door for retrospective analysis. The 360 Hub coin tracker already rewards patient self-reporting. Dr. Rob's clinical credibility is the carrier signal for hospital-facing advocacy.
AZ Partners
Banner ED leadership · Phoenix Children's ED · Mayo Clinic AZ · HonorHealth · Tucson Medical Center · Valleywise Health · AZ Hospital & Healthcare Association
Data & Outputs
Banner retrospective door-to-analgesia analysis (de-identified) · Annual AZ ED One-Hour Report Card · AZ Hospital Compact one-pager · ASH 2027 academic poster
90d
QUICK-WIN MOVE. Draft the one-page AZ Hospital Compact pledge. Get a verbal yes from one Banner ED medical director before September 1. Even a single signature is a press release.
Play
6
Policy · Youth Advocacy

The Arizona SC Crew — Youth Policy Training

Mirroring CA Sickle Cell Disease Foundation · SC Crew Policy Training Initiative
Awardee Project
Trains transition-aged youth (16–24) with SCD as policy changemakers, culminating in a legislative visit. Thesis: 16-to-24 is when SCD patients fall off pediatric care and lose insurance. Train them as policy spokespeople and you solve two problems — re-engage them in care AND build the next generation of state-level SCD champions.
SCFA's AZ Play
Launch the AZ SC Crew — a 12-month cohort of 10–15 Arizonan SCD patients aged 16–24, trained in policy basics, media training, and legislative engagement. Culminates in a legislative day at the AZ state capitol with formal testimony submitted to AZ House and Senate health committees.
Why SCFA Wins
The 360 Hub is already a coin-earning, gamified platform. Repurposing the coin system to reward SC Crew curriculum (modules, mock testimonies, op-ed drafts) is a 30-day engineering lift, not a green-field build. No awardee has a gamification layer.
AZ Partners
CA SCD Foundation (curriculum partner) · Phoenix Children's adolescent medicine · AZ Youth Partnership · Children's Action Alliance · ASU School of Social Work · AZ House HHS Committee
Data & Outputs
12-module AZ SC Crew curriculum · 10–15 trained youth policy ambassadors · Recorded testimony / op-eds from each · Graduation event at AZ Capitol · Annual SCD Youth Voices report
90d
QUICK-WIN MOVE. Draft AZ SC Crew recruitment one-pager. Identify five candidate participants from the 360 Hub user base. Schedule kickoff call with CA SCD Foundation by August 15.
Play
7
Policy · Adult Advocacy

The AZ L.E.A.P. Cohort — Adult Advocacy Training

Mirroring Sickle Cell Consortium · L.E.A.P. (Leadership, Education, Advocacy, Policy)
Awardee Project
Multi-week hybrid training program producing the Sickle Cell Advocacy and Policy Playbook for community-driven policy change nationwide. Thesis: the 2025 grant is essentially national infrastructure for state-level advocacy — productized into a curriculum any state organization can adopt.
SCFA's AZ Play
Become the first state-level partner to deliver the L.E.A.P. curriculum as AZ L.E.A.P. Recruit 20 adult patient, parent, and provider advocates from across Arizona. Embed the curriculum into the 360 Hub so it lives on past the grant cycle. Publish an Arizona companion appendix to the national Playbook.
Why SCFA Wins
Adopting an externally-built curriculum frees SCFA from the cost and risk of building one. The 360 Hub is the LMS delivery layer. Coach Lucy's FFH network means we can deliver an AZ case study back to the Consortium as their flagship state implementation.
AZ Partners
Sickle Cell Consortium (curriculum host) · Mountain Park Health · ASU College of Health Solutions · Banner community engagement · African American Christian Clergy Coalition Phoenix
Data & Outputs
20 trained AZ L.E.A.P. graduates · AZ companion appendix to the national Playbook · 2 live policy events Year 1 (Phoenix + Tucson) · Evaluation report submitted to the Consortium
90d
QUICK-WIN MOVE. Email the Sickle Cell Consortium executive director to express formal interest in being a Year 2 state partner. Frame Arizona as a clean test market with no existing SCD advocacy infrastructure, so any traction is attributable to L.E.A.P.
Play
8
Meta-Play · Coalition

Sickle Cell Care AZ — The Coalition Convening

The meta-archetype across all 8 SCALE awardees
Awardee Project
Across the 2025 cohort, the meta-archetype: a state-level coalition that brings patients, providers, payers, hospitals, and legislators to a single table to draft model legislation. Thesis: no single grant project moves the needle without a coalition behind it. The states that win the next decade of SCD policy will be the ones that convene the coalition first.
SCFA's AZ Play
Convene Sickle Cell Care AZ, a quarterly multi-stakeholder coalition with a published charter. Founding seats: SCFA (convener), Banner Health, Phoenix Children's, AHCCCS, AzDHS, SCDAA, one patient-advocate seat, one family-advocate seat, one transition-age youth seat. Year-1 deliverable: a 25-page Arizona SCD Action Agenda.
Why SCFA Wins
Coach Lucy as global director + the FFH platform is a coalition-ready brand. The 360 Hub is the natural convening website. Convening is exactly the kind of role a small but well-positioned nonprofit can punch above its weight to claim.
AZ Partners
All AZ partners from Plays 1–7 + AHCCCS · AZ Senate Health Committee · AZ House HHS Committee · SCDAA national office
Data & Outputs
Sickle Cell Care AZ Charter · 25-page Arizona SCD Action Agenda · 4 quarterly meeting summaries · Coalition website on 360 Hub · Press launch Q1 Year 2
90d
QUICK-WIN MOVE. Draft the Sickle Cell Care AZ Charter as a one-pager. Identify the first three named individuals to sit at the table: one each from Banner, AHCCCS, and Phoenix Children's. Schedule the kickoff convening for January 2027.
The Arizona Wedge

Three bills. One coalition. One state.

Each of the eight plays can stand alone. None is fully powerful on its own. The wedge that turns SCFA from a competent state org into a national exemplar is the coalition layer on top of all eight — and the three bills that coalition will draft.

Bill 1
Arizona SCD Registry
Adopt the Texas HB107 framework — voluntary, patient-consented state registry housed at AzDHS, with data-sharing agreements with AHCCCS and newborn screening. SCFA's role: community-trust intermediary.
Bill 2
AHCCCS Medicaid Health Home for SCD
Adopt the New York Medicaid Health Home framework, scoped to SCD as a single-qualifying condition. SCFA's role: pilot operator (with Banner) and patient-experience evidence base.
Bill 3
AZ ED Treatment Standard
Codify the NHLBI one-hour pain-management standard for ESI level-2 SCD patients. SCFA's role: data publisher (AZ ED One-Hour Report Card) + convener of the AZ Hospital Compact.

Implementation-ready when federal law passes

The federal SCD Comprehensive Care Act (S.721 / H.R.5178) was reintroduced in 2025 and remains in committee. When it passes, federal implementation funds will flow first to states that already have registries, Health Home designations, and ED standards in place. Texas, New York, Massachusetts, and California are positioning to grab the first wave. Arizona is not.

Sickle Cell Care AZ is how Arizona joins that list. Two years of coalition work positions SCFA as the natural state-level coordinating body when federal funds arrive. That is the durable strategic prize — not any single SCALE grant, but the seat at the table when federal money flows.

Why SCFA should convene rather than join

No other Arizona organization is positioned to convene this coalition. Banner is a health system with fiduciary duty. AHCCCS is a payer with procurement rules. Phoenix Children's is a hospital with pediatric scope. SCDAA is national without an AZ chapter footprint. SCFA is the only entity with statewide SCD focus, patient/family trust, technology infrastructure, and an established nonprofit operating posture.

Two-Year Roadmap

Sequencing matters.

Each play builds funding credibility, partner relationships, or data assets needed for the next one. The dependency graph: Map → Survey → Coalition → Registry Bill → Health Home → ED Standard → Youth + Adult Training. Sequencing out of order creates funder-conversation potholes.

Y1
Year 1 · Plant the Flag · Jun 2026 → May 2027
Priority 1: Play 2 — Map the Access Desert
Highest-leverage Year 1 artifact. Costs almost nothing (engine exists on the 360 Hub), produces an immediate visual any funder/journalist/legislator understands in 10 seconds, gives SCFA something concrete to lead with in every funder conversation. Ship v1 by September 1, 2026.
Y1
Year 1 · Plant the Flag
Priority 2: Play 4 — The Arizona CARE Survey
Quantitative-flavored qualitative data pairs with the map. The 360 Hub coin tracker makes deployment trivially cheap. First "State of SCD in Arizona" report publishes by April 2027.
Y1
Year 1 · Plant the Flag
Priority 3: Play 8 — Sickle Cell Care AZ (Coalition)
Convene within Year 1; keep the Year-1 deliverable simple. Charter signed, three quarterly meetings held, Action Agenda outlined. The coalition is the platform we use to attract Year 2 funding.
Y2
Year 2 · Translate to Policy · Jun 2027 → May 2028
Priority 4: Play 1 — Build the AZ SCD Registry Voice
The single most important policy win available to SCFA in the next three years. Year 2 is the right window: (a) we'll have the map and CARE Survey data behind the bill, (b) the coalition will be functioning, (c) TX HB107 implementation will be long enough to have lessons.
Y2
Year 2 · Translate to Policy
Priority 5: Play 3 — AZ SCD CARE Connection (Health Home)
AHCCCS conversations are long. Year 2 is when we move from the Year-1 quick-win introductory meeting to a formal whitepaper and a pilot design. The Banner relationship makes this possible inside a 12-month window.
Y2
Year 2 · Translate to Policy
Priority 6: Play 5 — The One-Hour Initiative
Hospital data analysis takes longer than expected. Year 2 is the right window because Banner trust will be deeper and Dr. Rob will have had a year to build relationships across other AZ health systems.
Y3
Year 3 Seeds · Keep the Door Open
Seed: Play 6 — AZ SC Crew (Youth)
A youth cohort needs a stable platform to launch from. Seed in late Year 2 with a recruitment one-pager + CA SCD Foundation partnership; first cohort runs Year 3.
Y3
Year 3 Seeds
Seed: Play 7 — AZ L.E.A.P. (Adult)
Wait until the Sickle Cell Consortium's playbook is fully published before committing as a state partner. Year 2 is relationship-building with the Consortium. Year 3 delivers the first AZ L.E.A.P. cohort.
Funder Map

No single funder above 30% of SCD revenue.

Portfolio approach: this table maps each play to a primary funder, two backup funders, and an indicative cycle timing window. Funder rotation is essential — do not stack two plays on the same funder in the same year.

PlayTier 1 FunderTier 2 FunderTier 3 FunderCycle Timing
Play 1 — AZ SCD RegistryHRSA SCD Treatment DemoAZ DHSRWJF State Health & ValueHRSA: annual NOFO; AzDHS: rolling
Play 2 — Access Desert MapVertex Patient AdvocacyBMS FoundationFlinn FoundationVertex: rolling; Flinn: spring
Play 3 — Medicaid Health HomeBMS FoundationHRSA SCD Treatment DemoMercy Care community fundHRSA: annual; Mercy: quarterly
Play 4 — AZ CARE SurveyRWJFVitalyst Health FoundationHealth Forward FoundationRWJF: rolling LOIs; Vitalyst: fall
Play 5 — One-Hour InitiativePfizer SCALE 2026BMS FoundationEmergency Medicine FoundationPfizer SCALE: Q1 2027 anticipated
Play 6 — AZ SC Crew YouthCalifornia EndowmentVertex Patient AdvocacyW.K. Kellogg FoundationCA Endowment: open RFPs; Kellogg: annual
Play 7 — AZ L.E.A.P. AdultSickle Cell Consortium sub-awardVertexAZ Community FoundationConsortium: Y2 TBD; AZCF: spring
Play 8 — Coalition ConveningRWJF State Health & ValueHelios Education FoundationVirginia G. Piper Charitable TrustRWJF: rolling; Piper: spring

Pfizer remains the headline funder for SCALE 2026 — but the map assumes a portfolio approach with no single funder above 30% of SCD-restricted revenue.

HRSA SCD Treatment Demo is the largest federal funder; pursue aggressively for Plays 1 & 3. Annual NOFO typically opens late spring.

AZ-only funders (Flinn, Vitalyst, AZ Community Foundation, Helios, Piper) fund AZ-specific work national funders deprioritize. Build relationships with a program officer at each before submitting an LOI.

Industry funders (Vertex, BMS, Pfizer) move on rolling cycles and respond well to LOIs. Build the LOI bank now.

Appendix

Five moves. Under four hours each.

The hardest part of this gameplan is the first 30 days. Each of these is a flag in the ground that the gameplan is in motion.

01
Publish the AZ SCD Access Desert teaser map
Use the existing 360 Hub mapping engine to produce a static placeholder map of Arizona — patient density (modeled from AHCCCS counts) overlaid with the zero NASCC Centers of Excellence in the state. Caption: "Arizona Needs a Center of Excellence. Here Is the Map." Post by July 1, 2026.
02
Deploy the AZ CARE Survey on the 360 Hub
12 questions, coin reward for completion, promotion through the FFH email list and Banner clinic referrals. Aim for first 25 completed responses before end of July 2026. Cheapest possible lived-experience data claim — goes live the day questions are written.
03
Email AHCCCS Division of Health Care Management
Request a 30-minute introductory meeting. One-pager titled "Arizona Is Not Implementation-Ready for the Federal SCD Comprehensive Care Act." Frame the ask as informational, not transactional. The Banner contract is the warm introduction.
04
Draft the Sickle Cell Care AZ Charter (1 page)
Five paragraphs: purpose, founding membership, meeting cadence, decision rights, 12-month deliverable (the AZ SCD Action Agenda). Share for review with Banner, Phoenix Children's, and SCDAA. Goal: one verbal yes from each, not signatures.
05
File the SCALE 2026 LOI early
Draft and refine a two-page Letter of Intent based on Play 5 (the One-Hour Initiative) — the play that most closely matches Pfizer's 2025 selection archetype. Have it review-ready by August 15, 2026 so we can fire the moment the cycle opens.
Why SCFA Wins SCALE 2026

The 8 awardees weren't chosen for size. They were chosen for clarity.

The eight 2025 SCALE awardees were not chosen because they are larger than SCFA. They were chosen because they framed their work around a clear policy thesis, picked a defensible state-level audience, and showed up with named partners. SCFA can match all three.

Three things to match

1. A clear policy thesis. Ours: Arizona has no SCD-specific state legislation. We can be the first state coalition to draft model legislation that is implementation-ready for the federal SCD Comprehensive Care Act.

2. A defensible state-level audience. Ours: ~900 modeled Arizonans with SCD, concentrated in Phoenix and Tucson, served by zero NASCC Centers of Excellence, in a state that runs Medicaid (AHCCCS) at scale.

3. Named partners. Ours: Banner Health (existing nurse training contract), Phoenix Children's, U of A Center for Rural Health, AHCCCS, SCDAA, and 12 other named organizations across the eight plays.

The next twelve months

The next twelve months are about doing this visibly and consistently — through the 360° SCD Hub, through Coach Lucy's convening voice, and through Dr. Rob's clinical credibility, until Arizona is the obvious next state to win.

Eight Plays. Two Years. One Coalition.

That is how we win. Not by applying to SCALE 2026 cold, but by spending the next twelve months making SCFA the obvious choice for Pfizer — while simultaneously stacking matching funding from HRSA, AzDHS, Vertex, BMS, RWJF, and Flinn.

8
Awardee Mirror Plays
3
Bills in 24 Months
1
AZ Coalition
Prepared by Coach Lucy Howell · Dr. Rob Gillio · The Force for Health Network · May 2026
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