1 Executive Summary
This was the working "final recap" before an intended Monday, August 3 announcement. Dr. Rob walked the SCFA leadership team through the current live state of the 360 SCD Hub — the app home screen, the new Health & Activity Trackers, group management for Blossom Where You're Planted, the cleaned-up registration and welcome flow, and both the private Executive Dashboard and the public "Sickle Cell in Arizona" impact page. The team reached decisions on the open design questions and produced a punch-list of small-but-connected fixes.
The central theme was framing: this is an announcement of new & improved enhancements, not a launch. The Hub has been live; the app's structure and group functionality already work and shouldn't be disrupted. The goal is to refresh what members see and announce the improvements without breaking the experience people are used to.
The biggest agreement was on the app home screen. Lucy initially proposed swapping the top "Welcome Members" graphic for a tracker announcement; Moses pushed back that the app is far more than tracking and the landing must stay holistic and consistent. The group settled on keeping the familiar home layout, refreshing the graphic into a holistic "new & improved" look, and replacing the now-meaningless "Welcome Members" text with a real announcement message. The tracker-specific welcome stays inside the trackers, not on the front page.
A recurring dependency shaped the timeline: the welcome graphic and navigation must be finalized before the short how-to videos are recorded, so the video matches exactly what a member sees. Lucy asked for the weekend to tie up the punch-list. Payment was explicitly removed as a blocker — SCFA committed to paying the same day. The plan is to have everything ready for Monday, with a firm rule that nothing goes out publicly until Moses and Lucy align and give the go. Monday's call will focus on campaign, calendar, and marketing.
2 Attendees & Roles
| Name | Organization | Role on this call |
|---|---|---|
| Dr. Rob | Force for Health Network | Drove the live app walkthrough (screen-sharing his phone) |
| Lucy (Coach Lucy) | Force for Health Network | Lead build/design; captured the punch-list & owns most fixes |
| Moses | Sickle Cell Foundation of AZ | Client lead / decision-maker; drove requirements & sign-off |
| Adia | Sickle Cell Foundation of AZ | Admin & group moderator; point person for groups |
| Awilda (Wilda) | Sickle Cell Foundation of AZ | Community/program; to send the zone-leader list to Lucy |
| Akpan | Sickle Cell Foundation of AZ | SCFA representative |
Attendee list per the meeting open. Auto-captions did not label speakers; transcript speaker attribution below is reconstructed from context and may contain minor errors.
3 Key Decisions Reached
Retain the familiar home layout for consistency. Refresh the top graphic into a holistic "new & improved" look and replace the "Welcome Members" text with a real announcement. The tracker welcome lives inside My Health Trackers, not on the front page.
The Hub has been live; structure and group functionality are unchanged. Communications announce enhancements rather than a go-live.
Keep the main "central hub" group for zone leaders' training and messaging. Each leader is linked to their own zone (Tucson, West Valley, East Valley, Central Phoenix, Pinal); members belong to their zone subgroup, not duplicated into the main group.
Registration is public and open to anyone anywhere, so it won't ask for a zone. Zip code becomes mandatory. Community leaders place people into zones on the back end; add a "Not Applicable / not from Arizona" path and an "I want to volunteer" option.
It's contractual scope and a flagship initiative, so it's included in the press release — but it remains targeted to those living with sickle cell within the active zones, not opened to the general public yet.
Use non-personal admin accounts (e.g., info@ / support@scfaz) so continuity survives staff changes — relevant with Kevin departing Aug 31. Each partner/hospital group needs a designated moderator.
Aggregate counts only — no names — per HIPAA. Applies to the public impact page and the Uber/transportation reporting. Public numbers must carry their sources.
Formerly the "Empowerment Advisory Council." It's the stepping-stone vehicle for onboarding the six hospital partners.
SCFA pays same-day. Target Monday, Aug 3 — but no press release or announcement goes out until Moses and Lucy align and confirm ready.
4 Main Highlighted Issues
Numbers on the public "Sickle Cell in Arizona" page were questioned live — the 8,000 / 45–65k national figures, and "477 trait-positive newborns" labeled 2010. Sickle cell trait and disease are being conflated, and no sources are shown. This page is funder-, NIH-, and HRSA-facing.
Direction: Add source citations and Coach Carla / Dr. Rob tooltips showing where each figure comes from (ADHS data used for the 2022/23 government presentation); clearly separate trait vs. disease; add year filters defaulting to aggregate. Pull current trait stats from ADHS (Fran back after next week) for the upcoming Sickle Cell Trait campaign.
Groups have been live but unused; only Adia is a moderator. There are no designated leaders per zone or per hospital group, so join requests (e.g., Dr. Franz Chris requesting Phoenix Children's) go unmanaged. 200+ existing members aren't associated with any zone. Empty groups read as "nobody's here."
Direction: SCFA sends the zone-leader list; Lucy/Adia preset leaders + moderators and pin a welcome message per zone. New members auto-tag to a zone on activation; existing members are invited via the announcement. Hospitals are onboarded through the Community Health Advisory Council (board/protocol approval required — SCFA can't unilaterally add hospital staff).
The tracker course/tutorial isn't connected to the new tracker yet — it would teach members with outdated graphics.
Direction: Lucy updates the course to the new tracker and records a brief (~1 min) how-to plus a welcome video over the weekend. Sequencing note: the home graphic and navigation must be locked first, since the videos must match final screens exactly.
Make zip code mandatory; move the zone question off the welcome tour and make it conditional on the registration form (only for AZ residents living with sickle cell); add "Not Applicable" and "I want to volunteer" options. Moses also emailed comments flagging language in the Terms & Conditions that "doesn't make sense."
Direction: Lucy implements the conditional logic and revisits the Terms & Conditions against Moses' emailed notes.
The website donate button (PayPal) was fixed and is working. However, SCFA isn't findable in Venmo's recipient lookup, so a test $10/$100 donation can't complete. PayPal is tied to bank account ending 3760 — needs verification.
Direction: Register/verify a Venmo account for the Foundation (or remove Venmo as an option); confirm PayPal bank routing. FFH offered to help wire donations into the ecosystem next week at no extra cost.
The new mobile-responsive website homepage is approved but not yet deployed (Lucy is cautious about publishing before final review). The physical sicklecellfoundation.org site (managed by Kevin, handoff pending to a volunteer) and 360scdhub.org need to stop being fully disconnected.
Direction: Deploy the approved homepage after sign-off; discuss connecting the ecosystems on a separate call next week.
Too much white space; make the "360 SCD Hub" title bigger; enlarge the "Trackers" option so it reads at parity with Education/Community. Optimize for mobile (≈95% of sign-ups are mobile).
Direction: Lucy improves sizing/visuals on the tour screens.
Moses prefers "360 SCD HUB" (caps, for consistency with SCD); Lucy pushed lowercase "hub" so it reads as a friendly word. Minor, adjustable.
Direction: Cosmetic — align on a single convention.
5 Follow-Up Action Items
| # | Item | Owner | Priority | Status | Notes |
|---|
6 Clean Transcript
Cleaned from auto-generated captions: timestamps consolidated, filler and cross-talk trimmed, fragments merged into readable turns. Speaker labels are reconstructed from context — the source captions were not diarized, so attribution is a best-effort reconstruction. Meaning is preserved; wording is lightly smoothed.